Monday, June 17, 2013

Feeling ill again

The last few days, even though I've been trying to eat well, I have been feeling sick again. I am fatigued, lethargic, cold, anxious, feel like I'm gasping for air at times and sleeping a lot more. I have trouble getting to sleep at night sometimes. Other nights I fight through sleepiness to get to bed without falling down. I feel off balance too. I do see the PA tomorrow morning so that's good timing. Oh and my appetite is waning again. I've put my significant labs in a spreadsheet for her to look at (I know, I'm such a geek and have too much time on my hands). I'm going to discuss some additional testing with her. I don't know which of the tests she will want to do, if any. I trust her judgement and will go along with whatever she wants to do (or not do). I'm tired of thinking of all this stuff and don't think they'll find anything through routine testing anyway. I never know when I'm going to feel this bad so it's very difficult to plan anything. Just walking around the house tires me out and hurts. My legs are sore again but not as bad as they were just a few days ago. I'm anxious to see Shellie tomorrow and see if she is just as stumped as Dr. Koren or if she would be willing to do some more testing. I'm not due for another CT scan until August to check on the benign growth on my adrenal gland. I want to keep an eye on it though since it did grow a small amount from December to February. Something is causing me to feel this way and I wish I could figure out what it is but testing is not really leading me anywhere at this point.

I did do some genetic testing on my own through 23andMe. I haven't decided yet if I will pursue researching it or not. It's very complicated and I'm not sure if it would help anyway. I think I'm just tired overall of looking through test results and trying to learn what it all means. I do know that I'm sick and tired of being sick and tired. My B12 and D are consistently low for the past year at least. I'm sure that has something to do with how I'm feeling. I've been reading about B12 supplements and think there may be something more effective to take than B12 tablets. They haven't helped at all. There is a supplement called Methylcobalamin B12 (methylated B12) that are sublingual lozenges. They might be more helpful but I want to check with Shellie before I make any changes. I think the D3 I'm taking is okay though. I'll have to ask on the adrenal board I'm a part of to check on that for sure though. From the small amount that I could understand of the genetic testing it looks like B12 and D problems are an issue for me but I don't understand the testing well enough to know for sure.

I did ask about getting consults for the genetic testing and just to get additional info is $50. A consult with a doctor is $250 (which I can't afford). I don't think insurance will pay for that but I'm not sure. I'll have to check into that too. I may do the $50 consult though so I can get some more understanding and learn how to research my results.

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